Eight Week Old Toby Needs Your Help
The Big Story
Thursday, 31 July 2025 - 11 minutes
An eight-week-old Westmeath baby has been refused a drug for his life threatening condition due to the cost.
Toby Gavin, was only five days old, when he was diagnosed with Propionic Acidaemia which is a rare inherited metabolic disorder, that affects the protein pathway and can affect heart, brain and bone marrow.
The medication costs 4,000 euro a month.
His mum Lucy has set up a Go Fund Me page in order to pay for his treatment and has been speaking with Midlands 103's Sinead Hubble and says it's been a tough couple of weeks.
