Kinnegad's Cora Doyle was one of the longest living people with EB before her passing in 2010.
A Westmeath family is remembering their sister after her devastating loss 15 years ago.
Cora Doyle from Kinnegad, had the most severe form of EB, a rare skin condition that causes skin to break out in painful blisters at the slightest touch.
She was one of the longest living people with 'Butterfly Skin' and died aged 40, in July 2010.
Debra Ireland is a national charity that provided care to Cora, it relies on public support for it's services, such as counselling sessions, play therapy and home visits.
Cora's sister Patricia says the grief will never leave:
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