The treatment is already accessible in several other European countries.
The HSE Drugs Group has recommended a treatment for Friedreich's Ataxia should not be funded by the State.
A meeting yesterday concluded the price of Skyclarys is substantially higher than what's considered cost-effective in Ireland.
The treatment is already available in several other European countries.
Longford Westmeath TD for Fine Gael Micheal Carrigy knows a number of families in his constituency who were hoping to have access to the drug.
He says its manufacturer Biogen has some work when it comes to their talks with the HSE:
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