Harvey Morrison's mother is also calling for the Tánaiste to resign.
Harvey Morrison's mother says she will have a specific list of demands when she meets the Tánaiste in the near future.
9-year-old Harvey, who had scoliosis and spina bifida and faced delays of three years in accessing surgery, died two weeks ago after a short illness.
His mother, Gillian Sherratt says she will continue to call for Simon Harris' resignation, unless he agrees to implement changes to the care of scoliosis patients.
Scoliosis Ireland is backing calls for the Tánaiste to resign over empty promises.
Offaly's Gary Farrell, Founder of the group says Simon Harris has 'completely broken the trust' of people with the condition.
In 2016, Mr Farrell says he met with the then Health Minister who ensured him 'no child in Ireland would wait longer than four months for scoliosis surgery'.
The Rhode man spoke with Midlands103's Courtney Callaghan and says the Tánaiste has a lot to answer for:
Mr Farrell met with Simon Harris in 2016 to discuss treatment waiting lists for people with Spinal conditions:
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