It's believed early intervention could lead to better results.
There are calls to add Spinal Muscular Atrophy to the heel prick test for new born babies.
Each year in Ireland, six babies are born with the condition known as SMA.
The degenerative condition means that most affected will never walk.
Bróna Noonan is from Edgeworthstown, her son Donnacha was born with SMA.
She says earlier intervention could see much better outcomes:
GardaĆ At The Scene Of A Serious Crash In The Midlands
Acting Media Minister Promises Enforcement Of Reforms At State Broadcaster
Trade Union Movement "Too Quiet For Far Too Long" - Forsa Rep
Man Dies In Workplace Accident
Fleadh Cheoil Needs More Recognition - Westmeath Councillor
Midlands Animal Rescue Charity Store Closed After Break-In
Laois Literary And Music Festival Kicking Off Today
Westmeath Councillor Questions Location For Possible Fleadh Cheoil Plaque