They are planning on talking to elected representatives.
A campaign to highlight the under-resourced genetics services at Crumlin Hospital is underway.
The 'Get Rare Aware' campaign is being run by Rare Diseases Ireland, who cater to people across the country suffereing from a rare disease.
They are asking elected representaitves to take action in the hospital.
Founder of Rare Ireland, and Athlone's Laura Egan says where treatment is possible, early diagnosis is important:
Revenue Seize Over €156k Worth Of Contraband
The seizures have been carried out by Revenue officers in intelligence led operations.
New Bid Lodged for 46 Home Development In Laois
A decision is due in January.
Diverse Volunteers Driving Town Centre First Success - Regeneration Officer
Mountmellick, now in phase two of the scheme with Ferbane and Castlepollard, launched its official plan last week.
Westmeath Family Remembers Sister 15 Years On
Kinnegad's Cora Doyle was one of the longest living people with EB before her passing in 2010.
Midlands MEP Questions Mercosur Court Delay
Ciaran Mullooly pressed Roberta Metsola over the postponed vote.
Woman Hospitalised In Laois Crash
A car struck an ESB pole this morning.
Over €86k Awarded To Westmeath Domestic Violence Services
The Athlone Rape Crisis Centre will receive the highest amount of funding.
Sinn Féin MEP Demands Action To Protect Midlands Mother and Baby Home Records
Kathleen Funchion wants a modern digital archive system.
‘House of Horrors’: Brothers Forced To Abuse Sister Receive Sentences
The two brothers have received fully suspended sentences.
Plea ‘Final Decision’ Wait For Doctor Accused Of Dangerous Driving Causing Daughter’s Death
Babak Meshkat was formally charged earlier this year subsequent to a Garda investigation into a collision.
Laois TD Welcomes Reform To Ireland’s Asylum Accommodation System
Jim O’Callaghan will present plans to cabinet today to tighten international protection regulations.
Offaly County Council Reports Reverse Gender Pay Gap
Female workers earn almost 2% more than their male colleagues.
'Stylish' And 'Sexy' - TUS Calls for Removal of Tobacco Imagery
A study by TUS found 22% reported positive emotions towards the image.
29 Midlands Biodiversity Projects Awarded Almost €300k In Funding
It's part of the Local Biodiversity Action Fund.
Westmeath County Council Hike Commercial Rates By 10%
The local authority is also increasing the Commercial Rates Grant Scheme.
Three People Arrested Over William Delaney Murder Released
The man and two women were arrested in relation to the case yesterday.
Over 2,400 Midlands Children Taking Part In The Little Library Initiative
The scheme encourages children to join their local library and pick up a free book bag.
Offaly Campaign Raises Awareness of Hidden Domestic Abuse
The flags will dotted on lamp posts over Offaly.
Irish Rural Link Welcome New Cash Access Law
Irish Rural Link CEO, Ballycumber's Seamus Boland says the law will help rural areas.
Laois Library Reunites Missing Library Book From Abroad
A member of Portlaoise Library found the book in a Spanish hotel room.
