They are planning on talking to elected representatives.
A campaign to highlight the under-resourced genetics services at Crumlin Hospital is underway.
The 'Get Rare Aware' campaign is being run by Rare Diseases Ireland, who cater to people across the country suffereing from a rare disease.
They are asking elected representaitves to take action in the hospital.
Founder of Rare Ireland, and Athlone's Laura Egan says where treatment is possible, early diagnosis is important:
Water Supply Disruptions Expected In Offaly Villages Following Burst Main
A main was also burst in Rhode yesterday.
New €4m National Firefighter Training Centre Planned For Laois
The centre will be located in Abbeyleix.
Midlands Accounts For 17% Of Construction Site Fatalities
The region holds only 7% of the construction working population.
Free Retrofit Advice Event Taking Place In Westmeath This Evening
The event takes place from 6-8pm.
‘Unprecedented’ Road Repairs Underway On R400 In Offaly As Pilot Scheme Begins
The aim is for the road works to be complete halfway through November.
Second Man Arrested Over Four Westmeath Burglaries
A man was arrested in Clonmel this morning.
Taoiseach Acknowledges State Failures In Apology To Stack Family
Micheal Martin made the apology in the Dail this afternoon.
Gardaí Renew Appeal For Missing Laois Man
Stephen Sheeran Phelan was reported missing on October 8th.
