The charity, which supports people with the disease, is looking for an €810,000 investment to help patients.
DEBRA Ireland is asking the government to invest the equivalent of two cups of coffee a day to help patients with an incurable skin disease.
EB, also known as butterfly skin, is a lifelong debilitating and painful disorder which, in severe cases requires frequent bandage changes.
Emma Fogarty, from Abbeyleix, who suffers with EB, has previously raised the need for support and said "there were days when I was screaming in pain".
Head of Advocacy with Debra Ireland Joanna Joyce says they are looking for an €810,000 investment to help patients:
Gardaí Appeal For Witnesses Following Crash On Offaly Road
Westmeath Man Accused Of Stealing €7k Worth Of Golf Clubs From Employer
Midlands MEP Highlights Housing Pressures Facing Young Workers
HSE Dublin And Midlands Launches Winter Vaccine Programme
Laois Man Takes On RTÉ’s ‘The Random Driving Test’ Tonight
Offaly Pharmacist Urges Older People To Take Up Free Bowel Screening
Five Midlands Schools To Join Safe Routes To School Programme
Rural Homelessness On The Rise As Referrals Increase By 54%