Duchenne Muscular Dystrophy is a rare fatal muscular disease.
A Westmeath mother is joining a national call to legalise a drug that helps a fatal muscular disease.
Ten year old Noah Benson-Gately and his brother Rowan were diagnosed with Duchenne Muscular Dystrophy in 2020 which destroys muscle tissue.
A drug called Givinostat could help them as it delays muscle breakdown, but it's currently not available in Ireland.
Parents are meeting with the Health Minister at Lenister House next month in relation to the matter.
Noah and Rowan's mother, Athlone's Bianca Benson says public support is needed:
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